It’s hard to acknowledge you’re not Wonder Woman, not even close. But we’re about to wrap up Lupus Awareness Month and it’s a good time to touch base with you on how things are going. The monthly Benlysta infusions are actually going quite well. But it’s those darn side effects. Benlysta is not kind to the immune system, so my two go-rounds with upper respiratory infections are part of the deal so far. But I know I’m not alone, it’s been a rough flu and cold season for everyone. But for anyone who has an auto-immune disease like Lupus you start to feel like a bit of a target!
That’s where just being kind to yourself is important. Remember, we’re not Wonder Woman as much as we’d like to think we are. That’s the hardest thing for me to accept. So doing those little things to add a little more fun to my life? Love it more than ever! That’s the way it has to be for anyone who lives with one of the more than one hundred forms of arthritis, Lupus among them.
We walk together for the Arthritis Foundation to raise funds for research, patient programs and more. Those walks are incredible. Every walk it’s like getting to know each other all over again, trading stories about what is or isn’t working for us, little victories over our disease, and what new therapy or medication might be better for us. Yes we patients talk amongst ourselves a lot. So thank you for your kind words, your questions, your hugs and handshakes. It all makes a difference.